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Caregiver Burnout

Burnout among caregivers: summary of the scientific literature

Burnout among caregivers, whether professional or informal, is a worrying phenomenon studied across various contexts such as care for the elderly, children with chronic illnesses, or healthcare professionals. The data presented mainly concerns professional burnout, but also that of informal caregivers, emphasizing its characteristics, influencing factors, consequences, and potential mitigation strategies.

Note: This article was written by Archie, the AI research assistant of PaperDoc and provides a synthesis of recent scientific literature on the subject of caregiver burnout.

Prevalence and Characteristics of Burnout among Caregivers

Burnout among Professional Caregivers

A moderate to high rate of burnout is observed among healthcare professionals: 70% among general practitioners, 89% among medical interns, 66% among nurses, with significantly higher levels of emotional exhaustion and depersonalization among interns and general practitioners [9]. Among medical caregivers in China, the average quality of working life (QWL) score is 126.94±16.69, while professional exhaustion (burnout) and effort-reward imbalance (ERI) are negatively correlated with work-related quality of life. Burnout mediates 58.65% of the effect of effort-reward imbalance on this quality [2]. For oncology nurses, emotional fatigue is common but can be reduced by practices that encourage creative support and strengthen bonds with patients and caregivers, thus improving motivation and reducing burnout [16].

Burnout among Informal Caregivers

Among 184 caregivers (family or professional), 33.7% show high emotional exhaustion, 47.3% high depersonalization, and 22.3% a low sense of personal accomplishment. Regarding anxiety, 61.4% of caregivers report moderate anxiety [1]. For informal caregivers, burnout is more pronounced than among non-caregivers, especially when it comes to emotional exhaustion, with an impact on various personal and professional areas [3]. Among family caregivers of hemodialysis patients, 78% experience "little personal burnout," but significant psychological distress is noted, related to factors such as age, gender, marital status, education, and smoking [18].

Factors Influencing Caregiver Burnout

Factors Related to Work Characteristics and Context

Among professional caregivers, age, working hours, job stress, and training have a significant impact on burnout levels, while experience and education affect anxiety [1]. Support from supervisors is associated with decreased emotional exhaustion (37.28% show high EE) among professionals in Togo, and optimism reduces depersonalization (13.62%) and increases the sense of personal accomplishment (19.71% have low PA) [11].

Psychological and Social Factors

For caregivers, a combination of factors such as self-stigmatization, family resilience, and unmet needs results in varying levels of burnout. For example, a three-way interaction effect shows that burnout is high among mothers of children with special needs who have little family support and high needs, depending on the level of self-stigmatization [5]. The load perceived by caregivers is positively correlated with emotional burnout and depersonalization, and moderated by emotional empathy [4].

Impacts of Caregiver Burnout

Consequences for Mental Health and Behaviors

Burnout is strongly linked to depression, low subjective health, and, among informal caregivers, a higher probability of physical violence towards the person cared for (but not psychological violence) [8]. Moderate correlations (r=0.47) are noted between the severity of symptoms in schizophrenic patients and the levels of depression and burnout in their caregivers, with diminished psychological resilience [6].

Consequences for Quality of Care

Burnout affects the quality of care provided, as seen among peritoneal dialysis patients where such burnout leads to thoughts of stopping treatment and transfers to hemodialysis [17]. For caregivers of chimpanzees, burnout can degrade the relationship and quality of care provided to the animals [14].

Measures and Approaches to Prevent or Mitigate Burnout

Organizational and Community Approaches

The creation of community support networks targeting family caregivers, offering advice, support groups, training, and relaxation activities helps reduce burnout and prevent potentially severe negative outcomes [15].

Psychological and Motivational Interventions

Fostering intrinsic motivation among residential caregivers in China is associated with better pay satisfaction through reduced burnout (β = -0.46, p < 0.01) [7]. Simultaneous interventions aimed at reducing self-stigmatization, enhancing family resilience, and meeting caregivers' needs can help modulate burnout [5]. The management of emotional empathy and the enhancement of social support also appear as significant moderators [4].

Practices that Foster Resilience and Collaboration

Strengthening resilience against burnout involves adaptation, developing coping strategies to build a new normal, and resorting to family and spiritual supports [17]. In oncology, encouraging and creatively celebrating patients and their caregivers stimulates professional motivation and reduces exhaustion [16].

Conclusion

Caregiver burnout is common among both professionals and informal caregivers, with major impacts on caregivers' mental health and the quality of care. Influencing factors include job stress, workload, social support, education, intrinsic motivation, and family dynamics. Validated, specific measurement tools facilitate its detection. Comprehensive approaches combining organizational support, strengthening individual and family resilience, and targeted psychological interventions are necessary to prevent and mitigate this complex syndrome [1][3][9][2][5][4].

Sources:
  1. Zhang, W., & Ji, M. (2024). CHARACTERISTICS AND INFLUENTIAL FACTORS OF ANXIETY AND BURNOUT AMONG CAREGIVERS AND OLDER ADULTS. Innovation in Aging, 8(Supplement_1), 908–908. https://doi.org/10.1093/geroni/igae098.2933
  2. Qi, H., Hongyan, S., Song, H., Zhihang, Z., Ruiyin, H., Youjia, M., & Xia, L. (2024). The relationship between effort-reward imbalance and quality of working life among medical caregivers: mediating effects of job burnout. Frontiers in Psychology, 15. https://doi.org/10.3389/fpsyg.2024.1375022
  3. Gérain, P., & Zech, E. (2020). Do informal caregivers experience more burnout? A meta-analytic study. Psychology, Health & Medicine, 26(2), 145–161. https://doi.org/10.1080/13548506.2020.1803372
  4. Khalaila, R. (2022). Does emotional empathy moderate the association between caregiver burden and burnout among Arab family caregivers of older relatives? Health & Social Care in the Community, 30(5). https://doi.org/10.1111/hsc.13689
  5. Tang, C. S.-K., Yu, I. C.-Y., Ng, K., & Kwok, H. S.-H. (2025). An ecological approach to caregiver burnout: interplay of self-stigma, family resilience, and caregiver needs among mothers of children with special needs. Frontiers in Psychology, 16. https://doi.org/10.3389/fpsyg.2025.1518136
  6. Withdrawal: “Determination of depression, burnout and psychological resilience levels of caregivers of schizophrenia patients” Selin Gülbol, Mustafa Ari, Mehmet Hanifi Kokaçya. (2021). International Journal of Clinical Practice, 75(12). https://doi.org/10.1111/ijcp.14368
  7. WANG, E., HU, H., LIU, H., MAO, S., CHANG, R., & JIANG, W. (2020). The Influence of Intrinsic Motivation on Pay Satisfaction Among Caregivers in Residential Home for the Elderly in China: The Mediating Role of Job Burnout. Journal of Nursing Research, 28(6), e121. https://doi.org/10.1097/jnr.0000000000000399
  8. Gérain, P., & Zech, E. (2021). A Harmful Care: The Association of Informal Caregiver Burnout With Depression, Subjective Health, and Violence. Journal of Interpersonal Violence, 37(11–12), NP9738–NP9762. https://doi.org/10.1177/0886260520983259
  9. Clifton, J., Bonnell, L., Hitt, J., Crocker, A., Rose, G. L., van Eeghen, C., Kessler, R., Stephens, K. A., Teng, K., Leon, J., Mollis, B., & Littenberg, B. (2021). Differences in Occupational Burnout Among Primary Care Professionals. The Journal of the American Board of Family Medicine, 34(6), 1203–1211. https://doi.org/10.3122/jabfm.2021.06.210139
  10. Al-sayed, E. A. H., Shafik, S. A., Gomaa, A. A. A., & El-Zayat, O. S. (2022). Caregivers burnout of their children with thalassemia. International Journal of Health Sciences, 6546–6563. https://doi.org/10.53730/ijhs.v6ns4.9849
  11. Bafei, S. E. C., Chen, J., Qian, Y., Yuan, L., Zhou, Y., Sambou, M. L., Walker, A. N., Li, W., & Liu, S. (2023). The Association between Burnout, Social Support, and Psychological Capital among Primary Care Providers in Togo: A Cross-Sectional Study. Medicina, 59(1), 175. https://doi.org/10.3390/medicina59010175
  12. Fenstermacher, E., Owsiany, M., & Edelstein, B. (2022). INFORMAL CAREGIVING BURNOUT AMONG THE SANDWICH GENERATION. Innovation in Aging, 6(Supplement_1), 872–872. https://doi.org/10.1093/geroni/igac059.3115
  13. Farokhmanesh, K., Shamsalinia, A., Kordbageri, M. R., Saadati, K., Ebrahimi Rad, R., & Ghaffari, F. (2024). Design and psychometrics of the family caregivers burnout inventory of older adults with chronic disease. Frontiers in Public Health, 12. https://doi.org/10.3389/fpubh.2024.1449273
  14. Jensvold, M. L. (2022). A Preliminary Assessment of Compassion Fatigue in Chimpanzee Caregivers. Animals, 12(24), 3506. https://doi.org/10.3390/ani12243506
  15. Kuo, T. (2022). THE ESTABLISHMENT OF A COMMUNITY NETWORK TO SUPPORT FAMILY CAREGIVERS. Innovation in Aging, 6(Supplement_1), 345–345. https://doi.org/10.1093/geroni/igac059.1365
  16. Lee, G. Y., Chung, L. I.-Y., Ryu, S., Barnum, T., Chang, C., Hall, B., Kadymova, D., Maule, P., Meminger, M., Opfer, K., Patten, C., Schmidt, L., Tobias, M., & Chae, Y. K. (2022). Preventing healthcare professional burnout in oncology: How creative patient encouragement can go both ways. Journal of Clinical Oncology, 40(16_suppl), 11020–11020. https://doi.org/10.1200/jco.2022.40.16_suppl.11020
  17. Oveyssi, J., Manera, K. E., Baumgart, A., Cho, Y., Forfang, D., Saxena, A., Craig, J. C., Fung, S. K., Harris, D., Johnson, D. W., Kerr, P. G., Lee, A., Ruiz, L., Tong, M., Wang, A. Y.-M., Yip, T., Tong, A., & Shen, J. I. (2020). Patient and caregiver perspectives on burnout in peritoneal dialysis. Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis, 41(5), 484–493. https://doi.org/10.1177/0896860820970064
  18. Mohamed, W. A., Hosam, M., Mohamed, M. Y., & Sayed, M. M. (2024). Burnout Syndrome among Family Caregivers of Hemodialysis Patients in Luxor International Hospital. QJM: An International Journal of Medicine, 117(Supplement_2). https://doi.org/10.1093/qjmed/hcae175.552
  19. James, N., & Paulson, D. (2020). Development of a Novel Measure of Informal Caregiver Burnout. Innovation in Aging, 4(Supplement_1), 477–477. https://doi.org/10.1093/geroni/igaa057.1543
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